Family and friends of Misty and William Bailey are working together to host a barbecue plate fundraiser on Feb. 6 to help the Baileys with medical bills. You might say they’re mighty good-hearted people, helping a young woman whose own heart is giving her some trouble.
The Baileys recall the exact day her heart problems escalated to the current diagnosis of cardiac sarcoidosis – it was Nov. 18, 2019, Misty said on Thursday’s Town Talk. She had experienced some heart issues before then, (she knew she was in AFib and had arrhythmia) but the November 2019 event has taken her heart condition to a whole different level.
The medications, the regular visits to the hospital, all are adding up, and that is why their friends and family have stepped up with the idea of a fundraiser. The event will be held at Kerr Lake Country Club from 4 p.m. to 7 p.m. Tickets are $8 each; the goal is to sell 1,000 tickets.
Tickets are available now and will be available at the event, said Amy Bowling, Misty’s sister-in-law, who is spearheading this effort. T-shirts are available for sale as well, Bowling said. Visit the Facebook page “Fight For Misty” to learn more.
“It’s a really rare disease,” Misty told Town Talk host John C. Rose. The disease is treatable, but it has no cure. Since her diagnosis just more than a year ago, Misty has been hospitalized five times – two of those hospitalizations were 4-5 days each in ICU. She has a pacemaker now to help keep her heart in rhythm. Her most recent stay was in December, where doctors performed an ablation to help the arrhythmia caused by inflammation in her heart.
People diagnosed with sarcoidosis have tiny collections of inflammatory cells called granulomas that affect proper function of the affected organ. In Misty’s case, it is her heart that has the granulomas.
“The doctors at Duke are amazing.” Misty said. And I am grateful for everything they have done for me and continue to do.” Ultimately, she may need a heart transplant, she said.
Since her diagnosis, Misty said she has learned to be grateful for every little thing. It’s so important, she said, “to do what you can when you can.” On those days she really doesn’t feel like getting out of the bed, she gets up anyway. “I have to,” she said, “while I can.”
Misty expects to begin visits to the hospital every 4-6 weeks to receive infusions, which doctors hope will help reduce inflammation as well. “There are some days that I am just so tired,” Misty said, but husband William “is right there, my extra set of hands and feet,” she said. The couple has five children, and she credits William’s support for making all the difference.
Family, friends and the community have been supportive as well. William’s employers, the City of Henderson and Food Lion, “have both been behind me every step of the way,” he said. February 6 is going to be a good day, William said. “It’s gonna be a long day,” he added with a chuckle. “As we learn more and as we do more, our hearts are behind finding a cure,” he said.
According to Bowling, Mike Humphries and members of the Gela Hunt Club in Granville County are helping with the fundraiser, and Doug Puckett is cooking. The plate will include barbecue, cole slaw, potato salad, bread and assorted desserts.
Misty said she plans to be at the fundraiser, providing moral support for everyone working to make it a success. “I’ll be there to show my appreciation,” she said. “Friends, family, the community have really been good to us.”
For the audio story on TownTalk, click play…